Next couple of weeks – Detox

I’ve been focusing on detox the last two weeks, but I’m going to kick it into high gear today.  I will also focus on Coxsackie Virus the next couple of months too.  I will restart my IV and oral antibiotics the first Monday in August. After focusing on the IV treatment for a couple of weeks, I will focus on parasites for a week and detox the following week.  Then I will repeat the IV and oral antibiotics, Parasite and Detox weeks again.

I am hopeful that this round will work wonders and help put me back into a better place.


Back to the drawing board

I have had a very difficult few weeks.   At my last follow up, we discussed focusing on a parasite protocol.  We decided to do this based on some of my recurrent symptoms.  I also was pulling out of my IV antibiotic therapy fairly well and we were hoping to go a while without needing anything to treat specifically Lyme and Bartonella.  The Parasite protocol would cover some aspects of the Babesia coinfection.  The first few weeks were bad, but  nothing that I couldn’t handle.  On June 23rd, I began a new parasite medicine and within a couple of days my mild to moderate headache changed over to a severe headache.  Next thing I knew, it had been one week with a severe headache.  My head was pounding and throbbing at the front, but then it became out of control and my entire head hurt – and it felt like there was a belt strapped around the circumference of my head and squeezed to the tightest possible notch.  I tried a lot of different options, including skipping doses of medication and focusing on detox.  I even went back to some over the counter pain medications, but nothing put even a dent. Last week I  grabbed my last straw.  I felt extremely discouraged that I had fallen so far backwards in my symptoms.

Ultimately, we decided to push up my follow up appointment.  We went back to the drawing board today.  I will focus on detoxification for a couple of more weeks along with some herbal remedies.  Then I will return to some IV therapy (Still have my PICC line) for a few weeks and then focus on parasites again for a week or two. Then I will repeat this process. I am hopeful that this back to to board approach will work.

In addition to all of this, I needed to do something that would lift my spirits.  I have been posting Songs of the Day (SOTD) on my FB page for the past week and decided to add a tab to this website to serve as reminder for myself when I need a little cheering up.  Hope you all like it too.  🙂



I am alive

Yes I know.  I’m a horrible blog writer.  I *should* write more often, if only for my own memory sake.  But I forget.

So I thought I would share with you three things.

The good:  my PICC line is doing well.  I’ve now had it longer than I had it the first time (as of today – it’s been 2 days longer than I had it the first time).  Since I had the MAJOR oozing episode and we got that straightened out – we’ve continued the nasacort, only mefix, no statlock ritual – and it’s doing really well (knock on wood).

The bad:  my Coxsackie A & B virus panel came back positive.

The ugly:  I’ve had a headache now for nearly two weeks straight.  It’s a throbbing high pain headache.  It varies from a 7 to a 10 on the pain scale.  It’s been so bad on a number of occasions that I’ve cried because I didn’t know how much more I could take of the pain.  I decided with two people at my doctor’s office to skip a few day of killer medicines to see if that would help.  So far – it’s not (today was day 2 of skipping).  I’ve tried a lot of t hings to get it to reduce in pain level and so far nothing is helping. I hope it eases off soon because honestly it’s quite painful.