I’ve been focusing on detox the last two weeks, but I’m going to kick it into high gear today. I will also focus on Coxsackie Virus the next couple of months too. I will restart my IV and oral antibiotics the first Monday in August. After focusing on the IV treatment for a couple of weeks, I will focus on parasites for a week and detox the following week. Then I will repeat the IV and oral antibiotics, Parasite and Detox weeks again.
I am hopeful that this round will work wonders and help put me back into a better place.
I have had a very difficult few weeks. At my last follow up, we discussed focusing on a parasite protocol. We decided to do this based on some of my recurrent symptoms. I also was pulling out of my IV antibiotic therapy fairly well and we were hoping to go a while without needing anything to treat specifically Lyme and Bartonella. The Parasite protocol would cover some aspects of the Babesia coinfection. The first few weeks were bad, but nothing that I couldn’t handle. On June 23rd, I began a new parasite medicine and within a couple of days my mild to moderate headache changed over to a severe headache. Next thing I knew, it had been one week with a severe headache. My head was pounding and throbbing at the front, but then it became out of control and my entire head hurt – and it felt like there was a belt strapped around the circumference of my head and squeezed to the tightest possible notch. I tried a lot of different options, including skipping doses of medication and focusing on detox. I even went back to some over the counter pain medications, but nothing put even a dent. Last week I grabbed my last straw. I felt extremely discouraged that I had fallen so far backwards in my symptoms.
Ultimately, we decided to push up my follow up appointment. We went back to the drawing board today. I will focus on detoxification for a couple of more weeks along with some herbal remedies. Then I will return to some IV therapy (Still have my PICC line) for a few weeks and then focus on parasites again for a week or two. Then I will repeat this process. I am hopeful that this back to to board approach will work.
In addition to all of this, I needed to do something that would lift my spirits. I have been posting Songs of the Day (SOTD) on my FB page for the past week and decided to add a tab to this website to serve as reminder for myself when I need a little cheering up. Hope you all like it too. 🙂
Yes I know. I’m a horrible blog writer. I *should* write more often, if only for my own memory sake. But I forget.
So I thought I would share with you three things.
The good: my PICC line is doing well. I’ve now had it longer than I had it the first time (as of today – it’s been 2 days longer than I had it the first time). Since I had the MAJOR oozing episode and we got that straightened out – we’ve continued the nasacort, only mefix, no statlock ritual – and it’s doing really well (knock on wood).
The bad: my Coxsackie A & B virus panel came back positive.
The ugly: I’ve had a headache now for nearly two weeks straight. It’s a throbbing high pain headache. It varies from a 7 to a 10 on the pain scale. It’s been so bad on a number of occasions that I’ve cried because I didn’t know how much more I could take of the pain. I decided with two people at my doctor’s office to skip a few day of killer medicines to see if that would help. So far – it’s not (today was day 2 of skipping). I’ve tried a lot of t hings to get it to reduce in pain level and so far nothing is helping. I hope it eases off soon because honestly it’s quite painful.